VfW-Docu-Bioscoop-(4-Docus-Sync-Compleet)-NL.srt English (en) subtitles
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A first very clear awareness I
got when I was a medical student
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and helped with the psychosomatics block.
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And yes, every doctor was a man.
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And in that block, so in case studies,
every patient was a woman and they
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all had something psychological.
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And that was so special to see how
that was coined, while there wasn't
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any consideration of underlying factors
That was the first realization for me
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of, hey, this isn't right how we look
and how we are trained here as doctors
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The complaints I got around my 45th
birthday were gloominess, fatigue,
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little interest in the environment.
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Then I went to the family doctor
and the family doctor told me
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that it was a depression.
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But I asked, could it also be related
to the menopause?
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Yes Did you say no, because you're still
menstruating?
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Take the menopause for example.
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What I see is that many women
do not properly recognize and
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acknowledge this entire run-up to
their menopause.
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Their doctors don't either.
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Like, yes, you are only in
menopause when you no longer menstruate.
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But that is a whole process in which
ovaries are already working less well and
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an imbalance in hormones can occur.
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The imbalance prog is then an estradiol.
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They can be very sensitive for women,
some more than others,
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also depending on circumstances.
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But that very often leads
to, yes, you are burned out.
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No, you're not burned out at all.
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You're in menopause.
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You are depressed.
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No, you're not depressed,
you're in menopause.
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And so there are many problems that
women attribute to themselves, but also
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to doctors, that are menopause-related
but are not named as such.
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I got antidepressants and that didn't
do with me that I had few feelings left.
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I remained somber
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And my feeling went away, my feeling
towards the children, towards my husband.
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Then I got another medicine and that
was antipsychotics, I got that too.
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Yes, if menopausal complaints are not
properly recognized, it happens very often
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that women do not receive the right advice.
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For example what I see, unnecessarily
long on sick leave Because complaints
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do not go away or that a label
depression is applied and they
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get medicines for depression.
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Can help a bit
against those menopausal symptoms
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but it doesn't help enough.
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And yes, it often leads to
misunderstanding from the environment too
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So, now you have the pills then you
won't anymore.
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Women also think that of themselves.
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But yes, ultimately they are not
properly helped with what really helps
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Also that so much research has only
been done on men, on
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the healthy young men where the
drug research takes place
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while women are different.
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The whole process took years.
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I ended up in psychiatry.
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Unexplained health problems
with women do so much.
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It gives a feeling of failure,
a feeling of not being able to
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participate in society, a
feeling of being out of place.
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I always feel like a failure
and I think the impact is huge.
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I have extensive questionnaires
that they fill out in advance,
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so I try to overlook as little
as possible.
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And that women finally have
the feeling that they are
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being listened to, I am heard.
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When the antipsychotics didn't
help, they continued with
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electroshocks and that actually
only made me sicker.
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I don't work anymore, I think
that's a shame and my marriage is
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failed and contact with my
children has become less.
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If I were to give my life a
grade now, I would say a 4.
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It is so urgent because we are
currently abandoning so many
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women with those misunderstood
unexplained complaints.
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And we really need to change and
there really needs to be good
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research into what hormones
and menopausal symptoms do to women.
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I worry about how things are going.
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It's just not going fast enough.
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And in the meantime, there are
women who are at home or who
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cannot work or have a lot of
suffering and pain.
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While there could be a solution.
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And yes, this spoils a lot of
lives and it even costs lives.
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I can't do everything I used
to do. That is no longer possible.
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I really need structure and
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I have become silent.
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And there really needs to be a
solution.
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What I would like to say to
healthcare providers is that
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the patient must be left in his
value. And they also have their
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own self, realize that a man's
body is different from a woman's body.
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Yes, and if the doctor tells
you, madam, we really can't
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find out what's wrong.
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We have looked at everything,
that is probably because the
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doctor only looked at what he knows.
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And we still don't know so
much.
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From the age of forty I noticed
that my menstrual problems
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increased, more pain and more bleeding.
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In addition, I also had problems
around my heart.
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I had heart palpitations and I
felt a pressure on my chest.
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My periods had been heavy
since I was young.
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Very severe symptoms, a lot of bleeding.
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Long days, I was menstruating
for over a week.
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And always a lot of pain, so I
needed a lot of painkillers
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to be able to continue functioning.
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The GP didn't take my
menstrual problems so seriously.
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And it was said that I had to
learn to live with it.
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My GP took the cardiological
complaints a little more seriously...
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because there is a family
history and because I am of
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Hindustani descent.
I was referred to the
cardiologist and the cardiologist
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ultimately research was done.
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From the researcher's tests at
the cardiologist, it turned out that
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I suffered from heart palpitations...
Cramps of the microvessels.
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And the cramps of the microvessels,
that is more common in women
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who are going through menopause.
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And I received medication for
both conditions.
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In general, you see that about
80% of women going through
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menopause have symptoms and
a third of them have severe symptoms.
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And if you see that that takes longer
they often present to the GP.
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And if they can't figure it out at
the GP then at some point they come
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to us in the hospital, where we look
at tailoring to empower these
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women again.
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Research has shown that people of
Hindustani descent have a different
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vascular structure, making the
vessels appear narrower.
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The doctor advised me to have an
annual check-up
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for cardiovascular disease,
blood pressure measurement, cholesterol,
diabetes.
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And also to create awareness that
we are built differently.
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Our cardiovascular system is
built differently and that we should
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monitor that more closely.
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You see that people with different
skin colors may also have different
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conditions, especially skin conditions
For example, diseases like melanomas
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are seen later in people of color.
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You see that a disease like eczema
is less easily recognized in people
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of color. But because of certain
ideas from the system, certain thoughts,
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you also see that people of color
with...
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Pain complaints, that that is
recognized later.
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So if you look at different aspects
and then you look at how the
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care functions for people of
color, but also how certain diseases
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are recognized in people of color
you see that that is significantly
different.
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The symptoms I got were cognitive
in nature, which made it difficult
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for me to focus, concentrate, I
was very forgetful, I couldn't
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hold conversations well anymore.
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I was very sensitive to stimuli,
which also made it difficult for
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me to perform my duties properly
in my opinion.
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I worked in the medical world so
that wasn't good for patient safety
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...not good anymore.
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I couldn't guarantee that anymore.
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And eventually that's why I ended
up on sick leave.
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When I was stuck at home because
I couldn't function properly anymore...
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...I found that very difficult.
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I wasn't myself anymore.
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I couldn't understand what was
happening and I was never like that.
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And I actually tried to counteract
it by just stepping on the gas...
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...but I was just called back hard
because I didn't...
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I just couldn't do it anymore.
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I went through a whole period of
mourning... because I ultimately
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accepted... that I just couldn't
do some things anymore.
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My direct social environment
handled that pretty well... I got
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quite a bit of support from my
environment.
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From my employer, yes, I think my
employer wasn't so
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really knew what to do with them.
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They did try to give support, but
I noticed that they
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couldn't really do anything with it.
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And ultimately, my contract was
also not extended.
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If we specifically look at the
transition, for example, you see that...
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That it also has economic consequences.
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You see that women in menopause
are eight times more likely
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to drop out of work.
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Not only economically, but also
for their families.
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They are in the middle of a great
career, 40 to 60 years old.
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That you might just be getting
a promotion at work and then you
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drop out because of something
like the transition.
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And if that is insufficient and not
taken seriously in time, then you can
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drop out for years. When the internist
didn't really know what to do with me,
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she referred me to the gynecologist.
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The gynecologist said that I would
experience PMS symptoms, but I was
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already in my mid-40s.
I also wondered if it
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might not already be pre-menopause
or more perimenopause.
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I had already experienced some
symptoms, like a hot flash here or there.
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But I mentioned that, but the
gynecologist... I said that that
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couldn't be the case, given my age.
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The age of menopause is usually
between 40 and 60 years.
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An age in which you often also
provide informal care, have young
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children, the relationship is going
well or not, just taking career steps
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at work. It is an age when all
sorts of things come your way.
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And if you are dealing with all those
factors, then you can surrounding
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thinking, it is quite logical that
everything does not work if you
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have so many balls to keep in the air.
So the moment you then take the
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step yourself at some point and even
think about whether this is the
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transition, or that your GP or a
doctor thinks about it, there can be
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a certain barrier in between.
The gynecologist gave me the option
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to... ...try out the Lucrin injection
to see if that would help.
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Lucrin is a GnRH inhibitor, which
means that the signal from your
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brain... ...is no longer sent to your
ovaries so that you stop producing
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hormones. I started trying that and
it helped me.
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My symptoms decreased, and my
heart problems also decreased.
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And when I had used those injections,
after so many months of using the
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injections, I unfortunately already
experienced side effects. And the
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next option was, therefore, if
Leucrin would work, I have the
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choice to choose a surgical menopause,
an operative ...surgical menopause.
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And that is what I ultimately chose.
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If you look, for example, at women
of color... ...and their awareness
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around the symptoms... ...which
can present differently in women
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of color... ...it initially asks women
of color
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also... ...make the taboos discussable.
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Let me give you an example, endometriosis.
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You see that endometriosis, that it
takes a long time before it is
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discovered... ...in women in general.
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And in women of color, sometimes
two years longer.
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It asks of the women themselves...
Not to normalize pain, to know that
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If you have pain during menstruation
and it is severe, to discuss that very early
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in your family to see if there are other
people, with your family doctor and also
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with, for example, the gynecologist
or any doctor who deals with these pains.
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deals with these pains.
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It therefore requires a proactive
role from the patient in discussing
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the complaints.
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I'm still not working, I'm still in a
sickbed.
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I feel physically well, but not
cognitively yet.
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There are still the complaints that
I still can't figure out, where it
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comes from.
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I am trying to pick up my social life
a little more socially again.
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And I do volunteer work to see what
I can still do, what I can't do.
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So I'm trying to climb out of it
a little bit myself.
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Jamila's story is worrying and
unfortunately it is not a unique story.
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Unfortunately, we see more worrying
stories not only in the Netherlands,
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but worldwide.
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And of course it is also nice that
Voices for Women is committed to
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these women.
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And as doctors we are of course also
human, so also as a person I must
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say that this touches me enormously.
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And that is precisely why I think
it is so important to actively commit
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ourselves to this.
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But it really requires, and that is
really the message, it really requires
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a systemic approach from a system,
really a change.
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Because besides my emotion, although
it touches me, Shamila actually gets
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very little from that emotion.
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She benefits much more from a real
approach and that we ensure that there
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is not another Shamila who experiences
this. The message that I would like to
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give to all women is that they take
themselves seriously, take their
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complaints seriously, that they ensure
that the doctors listen to them and
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especially for the next generation,
like my daughter, don't let yourself
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00:16:01,724 --> 00:16:03,824
be fobbed off, your complaints are real.
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I know I have a lot of willpower.
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00:16:09,724 --> 00:16:13,584
Maybe stupid to say, but because
I've already had quite a few things.
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00:16:13,885 --> 00:16:15,224
And yes, I just want to live.
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I'm not tired of life.
237
00:16:25,380 --> 00:16:27,300
I think life is far too beautiful.
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00:16:27,300 --> 00:16:29,520
The most important part of my
complaints actually started after
239
00:16:30,980 --> 00:16:33,200
my pregnancy.
240
00:16:33,760 --> 00:16:38,860
That was 29 years ago.
241
00:16:38,860 --> 00:16:40,000
But after my delivery they actually
thought another child was coming.
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00:16:41,060 --> 00:16:42,560
Because I had that pressure.
243
00:16:43,300 --> 00:16:47,680
But yeah, nothing came.
244
00:16:47,680 --> 00:16:49,160
And it was... And there, so to speak,
swollen and nobody actually knew what
245
00:16:49,160 --> 00:16:52,080
it was.
246
00:16:52,300 --> 00:16:54,860
And after the delivery I was sent home.
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00:16:55,339 --> 00:17:00,959
And after that I almost couldn't walk
again.
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00:17:00,959 --> 00:17:03,959
And since that time I have actually
been to the gynecologist, but they
249
00:17:03,959 --> 00:17:08,159
couldn't actually find it.
250
00:17:08,159 --> 00:17:12,220
And after that I was admitted and
they operated on me seven times.
251
00:17:12,220 --> 00:17:14,899
And so I actually want every doctor
who works with women to have a broader
251
00:17:15,730 --> 00:17:20,030
The focus is on the typically female...
252
00:17:20,230 --> 00:17:23,250
We are trained to recognize male
symptoms.
253
00:17:23,889 --> 00:17:28,550
That is the great example,
the body of the man.
254
00:17:28,550 --> 00:17:32,790
The body of the woman works differently
and the mind of the woman sometimes
works differently.
255
00:17:33,310 --> 00:17:36,250
I knew one thing for sure, if it's
not something, it's postpartum
depression.
256
00:17:36,250 --> 00:17:37,850
Because I knew someone with
postpartum depression and they
257
00:17:37,850 --> 00:17:41,550
really distanced themselves from their
child.
258
00:17:41,550 --> 00:17:46,050
And the only thing I really wanted
was to keep my child with me was
259
00:17:46,189 --> 00:17:51,709
lifting my child up, was going to do
everything you want on that pink cloud.
260
00:17:54,080 --> 00:17:55,479
I missed a lot in being an
unthinking mother.
261
00:18:01,689 --> 00:18:04,989
Shit, stop for a moment.
262
00:18:07,210 --> 00:18:10,250
The pain that controls it in just
being able to be a mother.
263
00:18:10,250 --> 00:18:11,450
The pink clouds around me were
all mothers who were
264
00:18:11,450 --> 00:18:12,790
going outside with the children.
265
00:18:13,950 --> 00:18:17,230
And for me that was just difficult.
266
00:18:17,230 --> 00:18:19,330
I couldn't do that and I even just
ended up with a psychiatrist.
267
00:18:20,350 --> 00:18:24,790
I had to go to a psychiatrist
from the GP.
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00:18:24,790 --> 00:18:29,040
And I had a conversation there and
she said, you don't have postpartum
269
00:18:30,340 --> 00:18:34,160
depression, this is absolutely not,
if there is anything it is not this.
270
00:18:34,220 --> 00:18:40,040
Okay, it must be this or that, because
we learned that in the books.
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00:18:40,040 --> 00:18:43,660
And if something from your symptom
doesn't fit, then they don't know.
272
00:18:43,660 --> 00:18:47,840
That gives the woman sitting
across from you, of course, a
273
00:18:47,840 --> 00:18:52,500
feeling of despair. Another doctor
who doesn't know what to do with it.
274
00:18:55,230 --> 00:18:57,150
So that search was a
interminable, endless, desperate...
275
00:18:57,150 --> 00:19:00,170
A journey, let me put it that way.
276
00:19:00,170 --> 00:19:11,630
It is complicated for both parties.
277
00:19:12,150 --> 00:19:13,710
The search for this diagnosis,
I only really know since October
last year.
278
00:19:16,050 --> 00:19:20,210
28 years later.
279
00:19:20,210 --> 00:19:22,310
As a doctor, do you also feel
relatively powerless?
280
00:19:27,150 --> 00:19:31,210
Not being believed, not being seen
281
00:19:31,790 --> 00:19:34,970
On the social front, it became
increasingly difficult.
282
00:19:35,930 --> 00:19:40,910
For years I was able to mask it,
let me put it that way.
283
00:19:40,910 --> 00:19:42,650
Until at some point the pain
increased so much... that I
284
00:19:42,710 --> 00:19:46,610
just couldn't muster that anymore.
285
00:19:46,610 --> 00:19:48,230
If I can't really come to a
diagnosis properly...
286
00:19:48,230 --> 00:19:52,689
while there is enormous suffering...
287
00:19:52,689 --> 00:19:56,149
then you go home with the
feeling of... Wow, what are
288
00:19:56,669 --> 00:19:58,850
we on the surface of knowing
and understanding.
289
00:19:58,850 --> 00:20:04,189
And what are there still butchers to
make?
290
00:20:04,189 --> 00:20:06,649
It is often not for the sake of the
specialist, but there is still so
little knowledge or there is
291
00:20:06,649 --> 00:20:09,710
too little knowledge of the female
body.
292
00:20:09,830 --> 00:20:12,689
How the female body works in
relation to the male body.
293
00:20:13,795 --> 00:20:18,735
And I think I am a very big
example of that myself.
294
00:20:18,735 --> 00:20:23,035
Imagine, so again the situation,
and that really occurs frequently in
295
00:20:23,035 --> 00:20:26,615
a sense that you cannot come to a
good diagnosis and you don't really
296
00:20:26,995 --> 00:20:34,915
understand well, while you have
done your best, listened, and so on.
297
00:20:34,915 --> 00:20:36,275
Then that can also lead to some
anger being evoked in your patient.
298
00:20:36,275 --> 00:20:40,635
Nothing strange at all.
299
00:20:42,920 --> 00:20:50,220
The worst thing I have experienced
in the patient journey is...
300
00:20:50,220 --> 00:20:54,000
That I had to give up, that I should
no longer fight and that the only
301
00:20:54,340 --> 00:20:59,845
The only option left was euthanasia
to get rid of my partner.
302
00:20:59,845 --> 00:21:04,485
As crazy as it sounds, I suddenly
got from... After those two talks
303
00:21:04,485 --> 00:21:08,505
of this can't be happening, that
someone just tells me that I
304
00:21:09,205 --> 00:21:14,805
have to give up and accept it and
that this is what it is.
305
00:21:14,805 --> 00:21:19,005
And yes, also see if you can further
help people in your network Because
306
00:21:19,005 --> 00:21:22,645
I also really believe in network care
in that respect that you have to see
307
00:21:22,645 --> 00:21:24,380
you shouldn't just sit in your own
lane, you should be able to look and
308
00:21:24,380 --> 00:21:32,720
think more broadly. Yes Do you need
other stakeholders?
309
00:21:32,720 --> 00:21:38,960
Well, a very positive experience of
mine was that I accidentally ended up
310
00:21:38,960 --> 00:21:40,560
with a doctor through a referral that
was not written by my family doctor,
311
00:21:41,000 --> 00:21:45,460
but by my pain specialist.
312
00:21:45,460 --> 00:21:51,540
Then I ended up at a private clinic
and this doctor has my whole story
313
00:21:51,540 --> 00:21:57,500
from the beginning to the end. She
reviewed my entire file.
314
00:21:57,500 --> 00:22:01,880
And she took so much time for that
that she says, this must be it.
315
00:22:01,880 --> 00:22:06,660
I finally got the diagnosis
neuropelviology.
316
00:22:06,660 --> 00:22:09,900
And that actually means that due to
all the operations, I have a lot of
317
00:22:10,720 --> 00:22:13,720
connective tissue in my pelvis.
318
00:22:13,720 --> 00:22:20,065
Around all my organs, also due
to the abscesses.
319
00:22:20,405 --> 00:22:26,345
And that means that that... Has to
be removed.
320
00:22:26,345 --> 00:22:31,165
Failure, powerlessness, that is
frustrating.
321
00:22:31,165 --> 00:22:32,405
Because you really want to help
people in healthcare like me,
322
00:22:32,405 --> 00:22:33,325
who just really want to help people.
323
00:22:33,325 --> 00:22:38,265
That's why we started doing it.
324
00:22:38,265 --> 00:22:43,845
Be careful with a psychological
diagnosis, because a psychological
325
00:22:43,845 --> 00:22:47,005
diagnosis actually follows you your
whole life if it is noted somewhere
326
00:22:47,570 --> 00:22:51,690
and then often no more searches are
made for a medical physical diagnosis
327
00:22:51,690 --> 00:22:54,170
And that can be very bad for a
patient, while there is definitely a
328
00:22:55,110 --> 00:23:01,950
physical diagnosis that is the basis.
329
00:23:01,950 --> 00:23:04,710
We must ensure through education,
further training, adaptation,
330
00:23:11,805 --> 00:23:15,385
reflection on what we do, that this
is corrected.
331
00:23:15,965 --> 00:23:22,720
You hear from everyone that there is
actually very little wrong.
332
00:23:22,720 --> 00:23:26,460
That there is a lot wrong mentally,
but ultimately... Yes, because of
333
00:23:26,460 --> 00:23:28,380
all those physical complaints, I also
have psychological complaints again.
334
00:23:28,760 --> 00:23:32,140
It's all intertwined again.
335
00:23:32,140 --> 00:23:33,840
And it's just very difficult to
explain this to everyone, because
336
00:23:34,100 --> 00:23:41,560
they don't feel what you feel.
337
00:23:41,560 --> 00:23:45,420
And every day with so much fatigue,
pain complaints, and just extremely
338
00:23:53,035 --> 00:23:58,835
much weight gained that I no longer
recognize myself, I no longer know
339
00:23:58,835 --> 00:24:03,355
who I am. My complaints started
around the time I had my first period.
340
00:24:03,355 --> 00:24:07,575
So I was about 12, 13,
14 years old, something like that.
341
00:24:08,635 --> 00:24:10,855
It was mainly quite a bit of
fatigue, concentration problems.
342
00:24:11,205 --> 00:24:17,005
I also started to become depressed.
343
00:24:17,005 --> 00:24:18,745
And I noticed that my arms and legs
were starting to get thicker.
344
00:24:19,245 --> 00:24:23,985
I thought it was my whole body.
345
00:24:23,985 --> 00:24:28,105
But it was ultimately my arms
and my legs.
346
00:24:28,105 --> 00:24:33,360
A large knowledge gap in
women-specific medicine actually
347
00:24:33,740 --> 00:24:36,899
ensures that I... ...insufficiently
could deliver the quality of care
348
00:24:36,899 --> 00:24:40,340
that I would like to deliver. And
then women came to me and then they
349
00:24:40,340 --> 00:24:42,879
were disappointed. And what that did
to me was that I often felt
350
00:24:43,100 --> 00:24:46,659
frustrated, very powerless.
351
00:24:46,659 --> 00:24:51,260
I offered them as much of a
listening ear as possible, and
352
00:24:51,690 --> 00:24:56,750
I also indicated that I didn't
really know what to do either.
353
00:24:56,810 --> 00:25:01,950
And that was often very nice for
them to hear at that moment.
354
00:25:01,950 --> 00:25:04,130
It is incredibly important that
the woman who comes to your
355
00:25:04,130 --> 00:25:09,150
consultation feels completely heard.
356
00:25:09,750 --> 00:25:13,810
And feels recognized in her
complaints, because then she feels
357
00:25:13,810 --> 00:25:18,250
taken seriously. And what I've
experienced is that many women
358
00:25:18,250 --> 00:25:22,130
really felt like they were treated
like a number and that no one
359
00:25:22,130 --> 00:25:23,770
listened anymore. And that
actually increases the pain
360
00:25:23,770 --> 00:25:28,990
they already have from the physical
complaint.
361
00:25:29,330 --> 00:25:34,355
I also went to the doctor because
I was suffering from depressive
362
00:25:34,355 --> 00:25:37,695
symptoms. Apparently, at that
moment, I was very stressed, and my
363
00:25:37,695 --> 00:25:40,595
mother also had cancer when I was
around 14 or 15.
364
00:25:42,655 --> 00:25:47,915
So yes, that was quite logical.
365
00:25:47,915 --> 00:25:49,155
The general practitioner first
referred me to a psychologist
366
00:25:49,995 --> 00:25:53,735
and later to a psychiatrist.
367
00:25:53,735 --> 00:25:55,875
And that psychiatrist was like,
"Hey, you're going to start with
368
00:25:56,195 --> 00:25:59,574
antidepressants, with Prozac."
369
00:25:59,574 --> 00:26:02,395
At that moment, I was fourteen,
and I was also told that the
370
00:26:02,774 --> 00:26:05,695
Prozac had not been tested on women.
371
00:26:05,695 --> 00:26:07,655
But that it had only been tested on
adult men.
372
00:26:07,655 --> 00:26:14,485
And yes, I was just a child.
373
00:26:14,485 --> 00:26:23,025
So yes, at eighteen, nineteen,
I started on... Antipsychotics,
374
00:26:23,025 --> 00:26:26,045
and after a few weeks of use, I
suddenly had a small suicidal urge.
375
00:26:26,045 --> 00:26:27,785
I was completely panicked and
completely in shock, and my parents
376
00:26:27,785 --> 00:26:34,145
also said, "Hey, you're going to
stop immediately."
377
00:26:34,145 --> 00:26:39,690
As a person, I just found it very
distressing and sad to see that
378
00:26:39,690 --> 00:26:42,530
there is no adequate care for women.
That the healthcare in the
379
00:26:42,830 --> 00:26:44,910
Netherlands is currently
insufficiently geared towards women.
380
00:26:44,910 --> 00:26:50,870
Because it is completely geared
towards men.
381
00:26:50,870 --> 00:26:53,640
The years-long search had a
lot of impact on my life.
382
00:26:54,070 --> 00:27:00,010
Because I no longer believed in
myself.
383
00:27:00,725 --> 00:27:04,245
And because I didn't have a
diagnosis, it was also very
384
00:27:04,245 --> 00:27:05,925
psychologically difficult. And
because other people also just
385
00:27:06,385 --> 00:27:10,625
thought, "You're exaggerating," and
"Oh, she's just sick," "She's just
386
00:27:10,625 --> 00:27:15,524
weak." Women generally came to me
with a lot of abdominal pain
387
00:27:15,625 --> 00:27:19,325
complaints, headache complaints, and
complaints related to menstruation,
388
00:27:19,485 --> 00:27:24,764
around menopause. And also in the
phase that they have just become
389
00:27:25,450 --> 00:27:28,810
mothers, so postpartum. What we
also often see is hormonal
390
00:27:28,810 --> 00:27:30,350
problems and thyroid disease. Where,
with thyroid dysregulation, you
391
00:27:30,350 --> 00:27:34,310
also see that weight very often
becomes a problem.
392
00:27:34,310 --> 00:27:39,510
Of all thyroid problems, 90% are
women.
393
00:27:39,510 --> 00:27:42,770
The last internist really took half
an hour to almost an hour.
394
00:27:42,770 --> 00:27:49,350
More research is needed, because
this costs women's lives.
395
00:27:49,350 --> 00:27:51,950
About a year and a half ago, I was
diagnosed with lipedema.
396
00:27:51,950 --> 00:27:54,330
And a year ago, the Hashimoto's
diagnosis.
397
00:27:54,795 --> 00:28:00,715
My overweight is ultimately
due to the lipedema...
398
00:28:02,115 --> 00:28:06,615
Originated. What could really help
me at that moment in my search.
399
00:28:07,290 --> 00:28:12,629
Someone who would look at my family
history.
400
00:28:12,629 --> 00:28:15,050
Because Hashimoto's runs in the
family on my mother's side, and
lipedema is
401
00:28:15,050 --> 00:28:19,169
on my father's side of the family.
402
00:28:19,169 --> 00:28:23,350
More research is needed on
women-specific complaints.
403
00:28:23,350 --> 00:28:25,190
More research is needed on the
effect of medication
404
00:28:25,190 --> 00:28:30,455
and the side effects in women.
405
00:28:30,455 --> 00:28:36,995
More education is needed for women
...about what hormones do to their bodies and
406
00:28:36,995 --> 00:28:39,555
and lastly, a lot of attention in the
training of doctors and other healthcare
407
00:28:39,915 --> 00:28:46,955
professionals when it comes to
women's health.
408
00:28:46,955 --> 00:28:53,515
I finally, that was about a year ago,
then I, as
409
00:28:54,390 --> 00:29:02,010
ultimatum set that if it doesn't get
better and if I just don't...
410
00:29:02,010 --> 00:29:03,790
Get better, find myself again, I was
like, I want to apply for euthanasia
411
00:29:05,550 --> 00:29:11,670
at the age of thirty.
412
00:29:11,670 --> 00:29:13,690
I'm thirty now for a few months and
I luckily didn't do it.
413
00:29:14,890 --> 00:29:16,510
And I am really incredibly proud of that.
414
00:29:18,754 --> 00:29:20,435
The fight against everything
415
00:29:21,735 --> 00:29:25,715
And I didn't want that anymore.
416
00:29:25,715 --> 00:29:27,354
And also partly because I had also
found Voices for Women then, I
417
00:29:27,375 --> 00:29:31,635
was like, I have to keep going.
418
00:29:31,635 --> 00:29:39,034
It is no longer a fight just for
myself. It is a fight for
419
00:29:39,955 --> 00:29:41,514
actually all women who run into a wall
in healthcare.
420
^^^^^
And I have to continue for them.